Hum, I have epilepsy, I guess you already knew that. I am currently siezure free and doing really well. Anyone else out there want to share their story?
Sara
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Welcome to my blog! My name is Sara-Elizabeth. I am hoping to hear from alot of diffrent people arounf the world. Please feel free to add to my blog by clicking on comments and adding what ever you have to say. Thank you,
Sara-Elizabeth
17 comments:
I have a connective tissue autoammune disorder. I was diagoned like, a year ago but I'd already been struggling with the symtoms for a while.
Right now though, I am doing really well and I havent gotten too sick in a while!
Becky,
I don't know anything about this disorder, can you tell me more?
Sara
I have epilepsy, too. I'm a writer and I saw you on K.L.'s forum. My first two novels have a main character who has seizures like mine.
I'm also seizure free now, too. My seizures were triggered by caffeine and a chemical additive, so I feel incredibly lucky that doctors were able to figure that out.
I think your site is great Sara Elizabeth.
Thanks for making it.
Carrie,
Thank you for writing in. I would love to know more about your books. Please write in more info.
Sara
Hi Sara-Elizabeth,
I have epilepsy, too.
I loved your commercial. it really means something to me. People with epilepsy can do anything that people without epilepsy can do. Your commercial reminded me of that.
I am taking medicine to prevent the seizures. i might get off the medicine this summer!
My family and hopefully some friends and I are going to participate in your walk this
May 3rd. See you there!
Jenny
Jenny,
I would love for you to join the walk on May 3rd. I am also going to Washington at the end of March for the National walk. It took almost six months for me to be slowly taken off my meds. I was lucky it worked on the first time for me. Remember that is not always the case! Take your time and listen to the doctors!
Sara
PS how did you here about me and the walk?
Hey Sara
It's your favourite honorary Uncle in the UK! As you know I'm a pharmacist and I thought that I'd pass on a problem that I encountered the other day. I'm putting it on here because I want everyone who is on medication for epilepsy to make sure that they check with their doctor AND pharmacist before taking any new medicines.
At my hospital pharmacy we always ask patients what other medicines they are taking to ensure there are no interactions. My patient was a penicillin allergic patient with a chest infection. Unable to prescribe penicillin, the doctor prescribed clarithromycin BUT the patient was on carbamazepine, the levels of which are raised with when taken with clarithromycin or erythromycin. All the drug groups that could have been used for the chest infection had some risk in this patient.
Bet you never expected to see me writing on your blog!
David
Uncle David,
You are so right it is very important that your doctors know what medication you are on because medications do not always interact well togeather!!!
Thank you,
Sara
Hi Sara-Elizabeth:
I hope you having a good time in Washington DC. I am starting to collect donations for your walk in May. Can I bring my beagle? I will keep her on a leash. I heard about your walk through the Epilepsy Foundation.
Thanks. See you soon.
Jenny
Hi Jenny,
Yes please bring your dog, I am bringing mine! Thaks for your support and I look forward to seeing you on May 3. Right now I am in DC and we are between classes. Tomorrow is the big day on the Hill.
Sara
Hey Kid,
Don Imus has been plugging your event on WABC radio. He asked his comedian Tony Powell to look around your site and he said there was no way for anyone with a credit card to donate to your cause. Imus is now thinking on this...so you may hear from the old man any time now.
Thank you, We were trying to get a paypal account up and running to expidite the process but we were unable to get it up and running in time.
Thank you,
Sara
P.S. on my last message, on my home page you can still down load a sponsor form and mail checks to EFNENY directly in Albany.
Thanks again,
Sara
PSS - I almost forgot in my exsitement to thank Mr. Imus for talking about my walk on his show. This is awsome!!! I never thought my small town walk would make it to WABC Radio with Mr. Imus. WOW!!!!
Sara-Elizabeth
Big news... You can now make direct donations right on my site, from the home page. The Pay Pal account is up and running.
Thank you,
Sara-Elizabeth
Hi i have seizures to im trying to the exact same thing your doing and you right you enspire me i didnt no there was alot of people like me and i no that there is now so thank you and im doing great this website and everything of yours is just amazing ill talk to you later good Bye
Hi i have seizures to im trying to the exact same thing your doing and you right you enspire me i didnt no there was alot of people like me and i no that there is now so thank you and im doing great this website and everything of yours is just amazing ill talk to you later good Bye
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